The weather in Seattle for the past two days? Clear skies, close to 60 degrees, the days are starting earlier and ending later, spring is in the air. This is not normal and for two days I have had the chance to get out of the hospital and walk around in the sunshine. I have … More Let’s Talk About Guilt
Today, makes two weeks in Swedish Hospital in Seattle, it seems longer. I know all the nurses by first name, I know when blood draws are, I know that Dylan’s once distended belly hasn’t grown noticeable, and I know he feels better, but I also know the cancer fighting has just begun. Yesterday, before Dylan … More Where We’ve Been
Dylan woke up the next day with unbelievable throat pain. No one was sure if the pain was a side-effect of the chemo, which happens, or if it was some type of infection so they bombarded him with everything. With cancer patients who have entered into a low immunity phase, there isn’t the luxury of … More Ebb and Flow
By Monday, eight days into our journey, I had hoped Dylan’s distended belly would stop growing, but it hadn’t. Each hour it seemed to expand beyond what was humanly possible. Nine months pregnant is one way to describe it, but I remembered a term from my research on the Lost Generation that people used to … More Is this Hope, or Another Dead End?
Nights in hospitals are long. The eternal fluorescent lighting in the hallways, the hourly bathroom breaks, and the switching of IV fluids never gives the ill or the family much time to tuck in a good solid sleep, so it doesn’t take long to get sleep routines jumbled into a mess. It also doesn’t take … More Is this real life?
After the diagnosis there was relief, this is probably hard to understand, but knowing it was leukemia made things easier. The doctors knew this thing, they treat this thing, they cure this thing, while this entire ride was going to be new for us it was a path the doctors and nurses had trodden before, … More Which Circle of Hell is this?
Day two arrived, or was it day three? Hospitals are places where the normal rules of twenty-four hours cannot apply. The waiting hours are multiplied and the days can drift away without any feeling of accomplishment. Each doctor arrived, handed over their business cards, and talked about what it might be. The first action was … More Into the Unknown
Sometimes trips are long because one travels a great distance but there are times when a trip is long because of reasons beyond distance. The outward journeys our bodies take are often paired with an inward journey of the mind. The distances we travel in our mind can be both journeys of time and place. … More The Longest Journey