Day: February 16, 2015

Where We’ve Been

Today, makes two weeks in Swedish Hospital in Seattle, it seems longer. I know all the nurses by first name, I know when blood draws are, I know that Dylan’s once distended belly hasn’t grown noticeable, and I know he feels better, but I also know the cancer fighting has just begun. Yesterday, before Dylan and I had our Bro-Down, we spent some time talking about what beating cancer might look like. We talked a little about five-year survival rates and the future of cancer treatments, about what “cancer free” really means, and about the really scary prospect that all this progress is just a tiny step.

When we started chemo, Dylan needed help standing when getting out of bed, today he stands on his own and needs hardly any help getting up at night to empty his bladder for the five bazzillionth time. He discusses his treatments with his nurses and decides which pain killers and sedatives work best for him. He spent thirty minutes talking to Nicole about what cancer is and how it works. Things are better, but…but…but…

Yesterday, we knew Dylan would be starting a new chemo treatment and everyone indicated it shouldn’t be too much of a problem. He might get a headache, he certainly would pee a new shade of yellow (day-go), and depending on how he reacted, we could get a few days to spend outside of the hospital. Our plan was a simple one, all dude stuff all day.

We kicked off DudeFest 2015 by watching the NBA skills contests on my iPad. I recorded the event on my DVR in Sequim and through the interwebs I could contact my DVR and watch it on my iPad. I grew up holding a television antenna to improve the picture and turning a knob to change the channel, so sitting in a hospital room in Seattle and watching something on my DVR two hours away took a little getting used to. We laughed, cheered, and it all felt pretty normal except Dylan had to go to the bathroom every 15 minutes because they were pumping him full of bicarbonate to get the ph level in his pee to reach seven before starting chemo. (I don’t know what any of that last sentence means, but that is what they were doing.) After the dunk contest, Dylan hit the magic ph pee number and Nicole came in with the chemoimage

There is an odd ritual that takes place with each chemo treatment. The lead nurse arrives with the chemo drugs in a sealed in yellow bag. The lead nurse then puts on a Tyvek gown and opens the bag. A second nurse comes in and they read the labels on the patient’s arm and match it up with the chemo drug. I suppose this helps prevent mistakes. Then the bags of chemo drugs are hung on the tower and we go back to doing whatever we were doing. Every 15 minutes, Dylan’s vitals are checked and everything seems pretty normal, other than the fact that Dylan’s blood is being filled with deadly chemicals…another day in room 1266.

After this treatment, Dylan and I did a few laps around the ward and snuck into a couple empty rooms to compare their view versus our view. Some of the rooms have a pretty righteous view of the entire Cascade Mountain Range from Rainier to Canada, but our room is larger and closer to the important things like free coffee and the family bathroom. After five laps, Dylan sent me out to find two good Bro movies at a nearby Redbox. I picked Fury and The Equalizer. Dylan ordered a hamburger from the cafeteria and I went down and picked up one for me too. The rest of the night was spent watching two violent movies and eating unhealthy food. It was petty good, it would have been better if the tv screen was a little larger than 21 inches and we didn’t have to put on the subtitles to see/hear what was being said, but all in all, watching the movies was really good.

The only mildly troubling part of the day was when Dylan was weighed. Two days ago he weighed 226, today he weighed 207. His weight has fluctuated like Anna Nicole Smith’s in the past two weeks and now that his guts are back to intaking and outputting, he has cleared out a lot of stored materials, so dropping twenty pounds isn’t shocking, it is just something for me to worry about.

It’s 6:35 AM, the sun is rising, planes are drifting up from SEATAC into the clear skies every twenty seconds, the top of Rainier is pushing above the morning cloud bank, and my son is sleeping soundly.

%d bloggers like this: