A few days back, when Dylan’s throat was inflamed and any movement caused back pain and headaches, I said to him, “You know I’m really proud of how you have been brave through this whole thing.” “I’m just laying here. I haven’t been brave,” was his response. What is […]
Three weeks and one day, that’s how long Dylan’s first round of chemo lasted. Yesterday, around 9 am, Joanna came into room 1266 and said to Dylan, “Well, Bud, your counts are up to 1800. Want to go home today?” “More than anything,” Dylan said. 1800 was a […]
Three weeks, it’s now been three weeks, we thought be would have taken Dylan home by now, but we haven’t. Instead we watch blood counts, brush the dead hair off his pillow more and more often, and wonder why his body hasn’t snapped back into place. Everyone assures […]
Jon hasn’t contributed to the blog in days because we’ve come through those initial moment-by-moment swings of panic, denial, and reactions to the different daily chemo cocktails and their cruel/miraculous side effects that make for fascinating reading material. Dylan has come out the other end of the first […]
It’s 6 AM and I am sitting in the same squeaky chair in room 1266 that I have blogged from for the past two and a half weeks. I have a routine: Wake up, walk down the hall, make a pot of coffee, get my iPad set up […]
Editor’s Note: My mom watched over Dylan one night last week and I asked her if she wanted to write about her experiences. She said she would think about it and then she sent me a 50,000 word (this is a slight exaggeration) Magnus Opus. My mother lived […]
“Let me know if there’s anything I can do for you.” I’d like to try to address this statement, seeing as I’ve been hearing it often since my diagnosis. I appreciate the overwhelming support I’ve been receiving, I really do. I just don’t like this statement. Although sympathy […]
The weather in Seattle for the past two days? Clear skies, close to 60 degrees, the days are starting earlier and ending later, spring is in the air. This is not normal and for two days I have had the chance to get out of the hospital and […]
Today, makes two weeks in Swedish Hospital in Seattle, it seems longer. I know all the nurses by first name, I know when blood draws are, I know that Dylan’s once distended belly hasn’t grown noticeable, and I know he feels better, but I also know the cancer […]
Dylan woke up the next day with unbelievable throat pain. No one was sure if the pain was a side-effect of the chemo, which happens, or if it was some type of infection so they bombarded him with everything. With cancer patients who have entered into a low […]
